How do you deal with people who just do not understand? This syndrome is so different for everyone. Symptoms are so complex and hard to explain to others. Trying to help them understand what you are going through is almost impossible. Some people truly want to know what you are going through, and others really don't. I am trying to just not worry about what others think and know how I feel is how I feel. I don't have to validate myself to everyone in my life. It is too arduous. Be and feel how you feel.