How do you deal with people who just do not understand? This syndrome is so different for everyone. Symptoms are so complex and hard to explain to others. Trying to help them understand what you are going through is almost impossible. Some people truly want to know what you are going through, and others really don't. I am trying to just not worry about what others think and know how I feel is how I feel. I don't have to validate myself to everyone in my life. It is too arduous. Be and feel how you feel.
Do a lot of Sjögren’s patients deal with depression? If so, how do you help yourself? I have felt awful for a year now trying different medications from my Rheumatologist but can’t say it’s helping too much. I am already on an antidepressant. Anxiety has always been a problem too but now worse wondering if this is the quality of life I will live with forever. I can’t imagine living like this forever, a year has already taken a toll. I’m scared!!